Hello I have had a temporary ileostomy for over 5 years. 2 years ago surgeons had to remove additional 70 cm of small bowel because of a medical emergency. Because of the additional removal, I am no longer considered a candidate for Jpouch surgery. The length of the small bowel would simply not reach the anus from what I was told by a surgeon. My question is, is there any other options for me? Wondering if anyone has seen other patients in a similar situation before?
I have been dealing with Mount Sinai for surgery consultation. It seems they are considered the best and most experienced. For a second opinion, can you recommend some other surgeons/hospitals that I could reach out to in canada?
That is unfortunate for you! If surgeon said not enough small bowel than no. It does happen especially with people with ulcerative colitis. You could get a second opinion but I do believe chances would be limited in other options.
I found literature for Kingston General Hospital – you could go thru the FIND A NSWOC nurse at teh sites I sent earlier – the there should be one for Kingston General – they would havwe the knowledge who the surgeon was. See attachment. Here is a link to the hospital site https://kingstonhsc.ca/surgical-care/types-surgeries/ostomy-and-continence-surgeries
Ostomy Toronto – a non-profit organziation run by people with ostomies – they may be able to help you
Karen Bruton RN BScN MCISc-WH WOCC(C)
Nurse Education Consultant – Interprofessional Practice Support
Indigenous Services Canada, Government of Canada
Ostomy Canada (Volunteer)
Medical and Lifestyle Advisory Team Lead