Caring for someone with an ostomy can be challenging both emotionally and physically. If you are involved in the care of a loved one with an ostomy, here are some tips to take care of yourself as well as your loved one.

Emotional Well-Being

Be open and honest with yourself about how you are feeling and the struggles you are facing. Keep a journal or diary. Seek professional mental health care if needed. Lean on support from your other loved ones or friends. Join a support group for caregivers of ostomy patients to expand your support network with others who understand the unique challenges of being a caregiver.

Make sure you take time for yourself. Self-care is especially important when your life routine changes due to caring for someone else. Self-care ideas: hot bath with candles, at-home spa day, book a massage, go for a walk or run, meditate, read, do something creative, etc.

Physical Well-Being

Ensure you are getting enough sleep each night. Take time to move your body and participate in physical activity daily. Make sure you are eating food that fuels you and feels good; don’t always rely on quick snacks or fast food. Ensuring you feel well physically will help you feel good mentally, too!

Understanding Ostomy Care

Read resources to ensure you have a solid understanding of the type of ostomy you will be assisting with. Get an understanding of skin care, bag change routines and any adaptations for activities or lifestyle/diet that they might need. Consider attending appointments with them so that you can foster a relationship with their physician and ask any questions you may have.

Advocating As A Caregiver

Advocate for inclusive spaces and help foster understanding and empathy for ostomy patients within your own social circles. Celebrate small wins (and big ones) and milestones in their ostomy journey. Keep an open mind and welcome regular discussions about how care is going from the patient’s perspective. Help support them in advocating at doctors’ appointments to ensure they are getting the personalized and compassionate care that they deserve.

Always remember the important role you play in the life of whoever you are caring for; the work you do is truly life-changing. We thank you on their behalf for stepping up and helping care for someone with an ostomy. Visit the Ostomy Canada website for additional resources, information and support group information for yourself and whoever you are caring for. You are never alone in your caregiving journey!

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By Hannah Martin-Spencer, BKin, Ostomy Canada Marketing Team.